I apologize for not writing for so long, I have been going through a real tough time. Needless to say the Ipilimumad did not work and during the three months of it not working a new tumor grew in my abdomen and started affecting my life. I had to have surgery again this time cutting up and down my stomach. The recovery of this surgery was much more painful then the first. My family once again was wonderful in taking care of me and spending time with me.
I had a hard time recovering from this surgery. Once I was home I mostly stayed in bed for a month and I was getting sicker and sicker. My doctor wanted me to start the new treatment Braf but we couldn’t start it until I was heathy. I was getting so sick my doctor decided to put me in the hospital. In the hospital they got me on a good drug regiment that got me feeling much better.
After I got out of the hospital staying on the drug regiment I started feeling better and better so I was able to start my new treatment.
I started the Braf about three weeks ago. I am very hopeful about this treatment. The statistics for it working are much better then the other two treatment I have done. The particular drug I am on was not even available three months ago, very cutting edge :) I have scans next week to see if it is working 11/18. The good thing about this treatment is we don’t have to wait to do scans and we are going to get scans done frequently so getting a surprise large tumor won’t happen again. The treatment is in pill form. All I have to do is take two pills twice a day.
Lately I have been feeling really good. I can actually say I have been feeling normal. I don’t want to get my hopes up but I feel like this treatment is working. I feel better and stronger everyday.
Welcome friends and family
If you are reading this you are someone I care about. Since my diagnosis I know I have cut myself off from most of my friends and family. For a long time I thought this all was going to be over and I was going to be able to go back to my old life. I now know that is never going to happen. This is my life now and reality. Since it is really hard to talk about, I thought a blog would be a good way to let everyone know what is going on with me, without telling the same emotional story over and over. Please feel free to comment and ask questions
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