Welcome friends and family

If you are reading this you are someone I care about. Since my diagnosis I know I have cut myself off from most of my friends and family. For a long time I thought this all was going to be over and I was going to be able to go back to my old life. I now know that is never going to happen. This is my life now and reality. Since it is really hard to talk about, I thought a blog would be a good way to let everyone know what is going on with me, without telling the same emotional story over and over. Please feel free to comment and ask questions

Monday, August 30, 2010

Last Ipi Treatment

I had my last Ipi treatment last Thursday August 26th and made appointments for my scans. The treatment went well still no side effects and still feeling healthy and strong. I have MRI and CT scans on Thursday September 2nd and my PET scan is the next day on Friday. Then I have to wait a whole week for the results. I find out if this treatment worked on Thursday 9-9-10.

I have very mixed emotions on finding out if it worked. Of course I want to know but part of me wishes I had a couple more months of not knowing. I have liked this limbo of not knowing. I like that this treatment doesn't make me sick and I'm scared if the Ipi didn't work the next treatment could not be so nice.

I have prepared myself for all the different out comes. I have talked to my doctors and nurses and we all have agreed on a plan. If the Ipi works and my tumors have shrunk then I stay on the Ipi and go into remission for years and years!! If it didn't work and the tumors have stayed the same size or grown I will have surgery to remove the tumors. If the scans show new tumors then we try the aggressive treatment Braf.

Keep your fingers crossed for me and I'll let you know what the Scans say


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