Welcome friends and family

If you are reading this you are someone I care about. Since my diagnosis I know I have cut myself off from most of my friends and family. For a long time I thought this all was going to be over and I was going to be able to go back to my old life. I now know that is never going to happen. This is my life now and reality. Since it is really hard to talk about, I thought a blog would be a good way to let everyone know what is going on with me, without telling the same emotional story over and over. Please feel free to comment and ask questions

Thursday, July 22, 2010

Being in control of my treatment

From not knowing anything about Melanoma in the beginning, I have strived to get as much information as I can now. I learned after it was too late that Biochemotherapy is very controversial. Only twenty percent of Melanoma doctors agree with it. Most doctors recommend high dose ILK2. There is no going back but I have learned there is a whole community out there dealing with this horrible disease and other choices I can make in the future.

Doctors and drug companies are businesses just like everything else. They want to make money. Dr Minor wants to keep me has his patient so he only offers me only what is available to him. It is my responsibility to do what is best for me.

After the Biochemo Dr Minor tried to tell me what to do again. I was not going to let him do that again. I decided to get a second opinion on what I would do next. I went to UCSF med center and talked to the doctors there, they recommended a Braf trial. I am positive for the Braf mutation. But Dr. Minor had an Ipilimumab trial that he wanted me to do.

This was a very hard choice. This is when I decided I was going to be in control and choose the treatment I want to do not what the doctors want me to do.

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